Drug ruling makes cancer man pay up

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Thursday, May 21, 2009
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This is Exeter

A FORMER serviceman who has been denied a life-extending drug by the Devon Primary Care Trust (PCT) will have his case reviewed today.

Stuart Rickard, 63, from Woolsery has been fighting kidney cancer — and found a drug which he believes could extend his life for two to three years.

He has been privately funding his treatment on the drug Sutent, which costs around £3,600 for a six week session.

A scan has shown the drug has been slowing down the growth of his tumour.

But so far the Devon PCT has refused to pay for the drug.

This week it confirmed that the decision to deny him free access to the drug will go back to the Individual Patient Funding Panel to be looked at again.

The retired father of two and his wife, Margaret, have faced the financial challenge of paying for the drug.

Margaret said: "The only complaint we have is regarding the funding. The support we have had from all the professionals, including our doctors in Bradworthy, the hospital and the North Devon Hospice has been tremendous and second to none."

The drug company have given the couple a free sample and fund-raising will allow Stuart a second six-week session and part of a third.

But Margaret, a former teacher, fears if the decision goes against them they may have to start selling their belongings to pay for treatment.

Stuart began suffering problems with his kidneys in 2005. The following year a kidney was taken out and it was discovered to be cancerous. The cancer had spread to his liver.

He began taking a drug called Interferon, along with homeopathic treatment, which his wife, Margaret, says has a very low success rate, but was the only available treatment at the time.

The cancer seemed to have cleared up, but in October 2008 a routine scan showed a cancerous tumour in the pit of the kidney.

Stuart decided to use the Interferon for a second time but this time it had bad side effects.

So Stuart turned to Sutent Sunitinib, a new drug his doctors wanted him to try, and in December the growth of the tumour was slowing down.

The National Institute for Health and Clinical Excellence (NICE) recently approved Sutent for renal cancer patients who had never been treated with any other drug for the cancer.

This meant that patients like Stuart, who had already received other treatments such as Interferon, could not receive Sutent.

A spokesman for the Devon PCT said that the decision referring Stuart's treatment was made before the new guidance by NICE was issued.

He said: "Further to concerns being raised, Devon PCT has referred the original clinical decision back to the Individual Patient Funding Panel."

The NICE decision was hailed as "extremely disappointing" by Macmillan Cancer Support, who believed it would prevent thousands of people with kidney cancer getting drugs that could extend their lives.

The charity is in the process of appealing against NICE's decision.

Mike Hobday, head of policy at Macmillan, said: "These drugs could make a significant impact on the quality of life for kidney cancer patients, and it is a great shame that the manufacturers and the Department of Health could not agree on patient access schemes to make these drugs available to patients."

Stuart's family have received enormous support from their friends in Woolsery and the surrounding villages.

Stuart was involved with the village's pantomime earlier this year and an additional performance was put on to raise funds for his treatment.

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8 Comments

  • Profile image for This is Exeter

    by Barumbelle, Barnstaple

    Sunday, May 31 2009, 6:31PM

    “Thanks Julie, I wouldn't care if it meant jumping on one foot, shouting jibberish if it meant that my father had quality of life and that he could stay with us longer. I hope you never have to go through what my family have gone through.”

  • Profile image for This is Exeter

    by sam, braunton

    Friday, May 22 2009, 11:21PM

    “ironic isn't it that needle users/junkies etc can get free needles and other help with their filthy habit for free, (but paid for by others,and do they get cured?) yet this gentleman has to pay for needed medicine. how much are 'druggies' (who choose their habit) costing the health trust ? and how much would it cost to pay for those who like this man suffer cancer etc through no choice of their own?”

  • Profile image for This is Exeter

    by Roger, South Devon

    Friday, May 22 2009, 9:36AM

    “Sunitinib is licenced in the UK; NICE has agreed to it and his consultant thinks he should have it.

    What on earth are Devon PCT doing.

    Sunitinib works very well indeed for a very high proportion of cancer warriors. I was given 3 months before I was put on Sunitinib and I have now been on the drug for nearly 3 years.

    It is regularly prescribed in these circumstances, right around the world.

    Devon PCT needs to get with the plot.

    I”

  • Profile image for This is Exeter

    by Kelvin EJ Webster, Devon

    Thursday, May 21 2009, 8:03PM

    “This is absolutely disgusting, yet the MP's rob us blind, that money the MP's spend on their lawn manicuring could be spent to better the lives of men such as this. I am disgusted as a whole, why does this country just sit back, watch, moan, and then do NOTHING about it? I am gobsmacked that this can go on.

    This country has so much to be proud of, but things like this, when the MP's are blatantly ripping everyone off, should have a big mark when it comes to things like this. Ruins the will for anyone to be proud of this country, it makes me sick.”

  • Profile image for This is Exeter

    by mum, local

    Thursday, May 21 2009, 4:57PM

    “Julie, North Devon I hope to god you don't end up suffering with cancer and need to fight the PCT/national health system. I think this poor man should be given the drugs FREE on the NH even if it only prolongs his live by 2/3 years thats a long time in book.
    He fought for this country and paid his contributions until retirement, so he is entitled to FREE health care for what ever reason he may need.
    Lets hope the PCT see sense and give him what he needs FREE.”

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